Multiple Myeloma Clinical Trial Benefits

Multiple Myeloma is a type of blood cancer that starts in white blood cells called plasma cells, which help your body fight infections. Mutations occur when the genetic material in plasma cells changes, causing plasma cells to become problematic myeloma cells. As myeloma cells multiply, they crowd out normal blood cells inside bone marrow, and that’s when symptoms can appear.

In this video from the National Institutes of Health (NIH), Pamela shares her reasons for choosing to participate in a clinical trial to help treat her stage 3B multiple myeloma.  Find more information about clinical trials in your community here.

Sources: www.nih.gov, www.multiplemyelomaandyou.com

Should You Join a Clinical Trial?

Watch this video from the National Cancer Institute to learn some reasons you might want to join a cancer clinical trial. Like all treatment options, clinical trials have possible benefits and risks. By looking closely at all options, including clinical trials, you are taking an active role in a decision that affects your life.

 

Questions to Ask Your Doctor if You’re Thinking of Enrolling in a Clinical Trial

If you are thinking about taking part in a clinical trial, be sure to ask your doctor, “Is there a clinical trial that I can join?” If your doctor offers you a trial, here are some questions you may want to ask.

Questions about the Trial

  • What is the purpose of the trial?
  • Why do the researchers believe that the treatment being studied may be better than the one being used now? Why may it not be better?
  • How long will I be in the trial?
  • What kinds of tests and treatments are involved?
  • How will the doctor know if the treatment is working?
  • How will I be told about the trial’s results?
  • How long do I have to make up my mind about joining this trial?
  • Who can I speak with about questions I have during and after the trial?
  • Who will be in charge of my care?
  • Is there someone I can talk to who has been in the trial?

Questions about Risks and Benefits

  • What are the possible side effects or risks of the new treatment?
  • What are the possible benefits?
  • How do the possible risks and benefits of this trial compare to those of the standard treatment?

Questions about Your Rights

  • How will my health information be kept private?
  • What happens if I decide to leave the trial?

Questions about Costs

  • Will I have to pay for any of the treatments or tests?
  • What costs will my health insurance cover?
  • Who pays if I’m injured in the trial?
  • Who can help answer any questions from my insurance company?

Questions about Daily Life

  • How could the trial affect my daily life?
  • How often will I have to come to the hospital or clinic?
  • Will I have to stay in the hospital during the clinical trial? If so, how often and for how long?
  • Will I have to travel long distances?
  • Will I have check-ups after the trial?

Questions about Comparing Choices

  • What are my other treatment choices, including standard treatments?
  • How does the treatment I would receive in this trial compare with the other treatment choices?
  • What will happen to my cancer without treatment?

from: www.cancer.gov

Immunotherapy to Treat Cancer

Cancer immunotherapy clinical trials are critical to bringing new and potentially lifesaving treatments to more patients with more types of cancer.  Immunotherapy is a type of cancer treatment that helps your immune system fight cancer. The immune system helps your body fight infections and other diseases. It is made up of white blood cells and organs and tissues of the lymph system.

Immunotherapy is a type of biological therapy, a treatment that uses substances made from living organisms to treat cancer. >>Read more

 

 

Paying for Clinical Trials

As you think about taking part in a clinical trial, you will face the issue of how to cover the costs of care. There are two types of costs associated with a clinical trial: patient care costs and research costs.

Patient Care Costs

Patient care costs are those costs related to treating your cancer, whether you are in a trial or receiving standard therapy. These costs are often covered by health insurance. They include:

  • Doctor visits
  • Hospital stays
  • Standard cancer treatments
  • Treatments to reduce or eliminate symptoms of cancer or side effects from treatment
  • Lab tests
  • X-rays and other imaging tests

Research Costs

Research costs are those related to taking part in the trial. Often these costs are not covered by health insurance, but they may be covered by the trial’s sponsor. Examples include:

  • The study drug
  • Lab tests performed purely for research purposes
  • Additional x-rays and imaging tests performed solely for the trial

When you take part in a trial, you may have extra doctor visits that you would not have with standard treatment. During these visits your doctor carefully watches for side effects and your safety in the study. These extra visits can add costs for transportation and child care.

From www.cancer.gov